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17 year old daughter with endometrosis
Women's Health | Last Active: Sep 17, 2018 | Replies (26)Comment receiving replies
@amwein, I am so very sorry to hear about your daughter's condition. I have the non-stop severe pain that accompanies chronic pancreatitis and to have anything added on to that is unimaginable. I will certainly say a prayer for her and for you. one thing I have learned in my 11 years since I was diagnosed with pancreatitis is that my primary caretaker, my supremely kind wife, often has more difficulty than I do. She does not take any pain medication and can really do nothing to help other than to try and make me comfortable and she does so very well. I admire your daughter for suffering through her severe pain and still making it to school and attempting to maintain some normalcy in her life. I pretty much become a hermit when I am having a flare-up which is almost continuous at this point. I really hope she can find some relief from some source because she is way too young to have to endure this for months or years. One thing that keeps me a bit hopeful is that science is progressing so fast that I do believe that there will be discoveries that allow for treatment of CP that is something other than just attempting to relieve the pain. I don't have the knowledge, but I am certain there are incredibly intelligent people also working on the endometriosis in the same way studies are being done for the pancreas. Again, you both will have my prayers and best wishes as she seeks treatment for her horrible problems.
Replies to "@amwein, I am so very sorry to hear about your daughter's condition. I have the non-stop..."
Unfortunately, I have seen a few bad apples, but also lots of very good docs in my 11 yrs. of very closely working with healthcare providers. In just one encapsulated account, I would not presume to say your daughter had a bad doctor, but it certainly does not sound like there was much interest in getting to the cause of the symptoms. I do have a conversation with each doctor I see for the first time, that I am not interested in their 3 min per patient recommendation from their "system" and if I can't get as much of their time as I need to answer all my questions, then "have a nice life". I am happy to wait a few extra minutes if they show the person ahead of me the same courtesy I ask for. I know you will not find that situation at Mayo and my limited understanding, is that they treat by committee. That does not paralyze them in analysis like i does companies, but does get a multi-discipline approach for your daughter. Please update us all after her appointment and I would love the feedback on how you feel about their approach to medicine.
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Thank you and best of luck to you as well! I hate to see her suffer and I am sure your wife feels the same way about you. My very social daughter is also becoming a hermit and it is hard to watch. She went to school today for the first time in 10 days - had to pry her off the couch, but she did it! 😀 Best of luck to you - you're in my thoughts as well. No one should suffer like this!