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Lichen sclerosis diagnosis correct?
Autoimmune Diseases | Last Active: 2 hours ago | Replies (32)Comment receiving replies
When I have an uncomfortable flare up I get a urine culture for a UTI as the symptoms are similar. But, most times there is no infection. I do use a topical corticosteroid cream. I’m a 72 year old woman. I had ovarian cancer in my 30’s so I know my condition is caused by lack of hormones.
I’d like to hear from others about their experiences with lichen sclerosis.
Replies to "When I have an uncomfortable flare up I get a urine culture for a UTI as..."
Wow. Historically congrats. Being recovered from ovarian for 40 uears is really something. It is sadly not usually discovered early and back then, oncology was much fifferent than now.
I have Oral lichen planus, different than body, but still pretty miserable. I do imagine tho that genital has to be the worst. So sorry.
There are four types of lichen And I have three of them. If you are finding out now, you are lucky. I’ve developed it when I was 23 and I am now 75. When the doctor found, it didn’t know what it was. It was decades later before I got a name.
I have found out if I get stressed or worry about something I have more issues. I was told cotton underwear only. There are many websites out there for medical centers and universities that are very informative..
Read everything you can and make sure if it’s online it is a legit you could also check “Google scholar.”. That has more research on it.
You have been through a lot and it sounds like you’ve taken good care of yourself. Education is the best we could do for ourselves and every day they are learning more.
Wish you the best
Hi Minnosta10 …. Thank you so much for that information. It was incredibly helpful. I have been through a lot over my lifetime (3 time cancer survivor) so didn’t need this annoying diagnosis. But, that’s life.
😊
I have been on 2 meds that keep my issues in check.
Clobetasol propionate ointment & Estradiol vaginal inserts three times per week.
I use Lisepten and nothing else. My symptoms are zero most every day. It's been my go to for many years. Be positive and know you aren't alone.
Hello @annieparker51,
I combined your discussion on lichen sclerosis with an existing discussion on the same topic titled:
"Lichen sclerosis diagnosis correct?"
- https://connect.mayoclinic.org/discussion/lichen-sclerosis-diagnosis-correct/
Here you can meet @moontree, @sandy07 and @diwhitham2347 who discussed symptoms similar to yours.
Connect
@annieparker51 Welcome to Mayo Clinic Connect! I’m glad you found the site! I’m going to give you the link that will show you all the other sites for lichen sclerosis.
https://connect.mayoclinic.org/group/autoimmune-diseases/?search=Lichen+sclerosis#discussion-listview
This will give you all the discussions on LS (and the list goes on to another page or two). Just click on any link and it will take you to the discussion.
The other members will probably stop by in the morning with all their information.