Connect
← Return to What follows Reclast/Zometa if they are first treatment?
Discussion
What follows Reclast/Zometa if they are first treatment?
Osteoporosis & Bone Health | Last Active: 16 hours ago | Replies (16)Comment receiving replies
@mayblin Thank you for this information!
I wish my oncologist was more proactive about monitoring me with bone marker turnover markers but she isn't. My primary care doctor is also unwilling to order those bone markers. I consulted with an endocrinologist who is out of the Northwestern Hospital health care network (where my oncologist and PCP are) who was willing to prescribe these bone markers for me. I wanted to have a baseline before I start the Reclast.
I plan to discuss a possible reduced dose of Reclast with my oncologist, though I'm pretty sure she will want to use the traditionally prescribed dose. The breast cancer tumor board recommendations for treatment seem to follow what they consider evidence-based practice.
I continue to learn so much from you and others on this forum!
Replies to "@mayblin Thank you for this information! I wish my oncologist was more proactive about monitoring me..."
Connect
@prarysky
I was watching an interview on YouTube with Dr. Keith McCormick and he stated something along these lines, if you doctor won’t work with you then maybe you should get another doctor that will. You are paying this doctor. I did exactly that. I am still searching for a new Endocrinologist that is respectful of my wishes I feel okay doing this because I am the patient and they essentially work for me. I asked the endocrinologist I saw who wanted to put me on Reclast how I would know if it was working for me? She said I’ll re-order a DEXA scan in two years. I then ask about the bone marker turnovers and she poo poo them ( I had already had both the CTX and the P1NP that my PCP ordered when I asked her to do so) Saying they wouldn’t make a bit of difference in what she is going to prescribe me. Then she berated me for having them done.
I believe I read on the sub Reddit (r/osteoporosis )that there is a place you can have your blood tested just by ordering it yourself called Jason Health Labs. You can Google this to find a lab near you. But again, it would be nice if your doctors would be compliant with your wishes.