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Has anyone had Granulomas on or around their stoma?

Ostomy | Last Active: Oct 13 3:03pm | Replies (12)

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Yes, I have 4 of them. 2 of them are on my upper thighs and I can feel them when I touch on them. The other 2 are: spleen and my liver. I had a CT scan and they said they were benign. I would recommend getting a CT scan for it. The Pulmonologist is the Dr you need to see for it. Another Dr. you could see is a Rheumatologist, as granulomas can be connected to Auto Immune Diseases. I had a ultra sound done awhile back on the legs one and they said they were benign. Thank goodness! Does anyone here have an Immune Deficiency? I have CVID- Common Variable Immune Deficiency. My Immunologist says that some times my lung nodules can be associated with CVID and granulomas too. Just curious.... I don't think they typically do much with granulomas, unless they are causing pain. My Immunologist does want me to see a Genetics Dr. for the granuloma on my spleen.

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Replies to "Yes, I have 4 of them. 2 of them are on my upper thighs and I..."

@animallover25
Hi, I am wondering about the granulomas, I have heard of them but never thought that I might have them. Still don't know if I do. But I know I have MCS multiple chemical sensitivity.
I would like to know if you got a diagnosis for - CVID- Common Variable Immune Deficiency- I have never heard of it and wonder how it might be related to MCS multiple chemical sensitivity.
I struggle with all these auto immune deficiencies, I have just been diagnosed with it and he just called it auto immune deficiencies. Not a real cause just that my body was attacking itself.
I come here because I have a colostomy and I read about so much with it and then your post about other things that I had not even known about.
Thank you for sharing, I need to check into this also.