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I was sucessfuly treated for PMR, ended in 3/23 with a slow taper of the prednissilone that I was on. Then in 6/25 I had general anesthesia for the placement of a mediport for infusions. (My veins were shot.) I awoke from the surgery groggy but fine and was sent home, where I fell asleep for another 2 hours. When I awoke, I could tell all was not well. I had the same kide of muscle pain (exactly) that I had with PMR. And it got worse until it was all I could do to get out of bed to use my potty chair. It got worse about 3 days then started to let up and took about a week to resolve. I didn't take anything, Tylenol didn't help and I wasn't going to self medicate. I made lots of phone calls to let everyone know what had happened but never had a call back to find out the drug. I still think it was a IL 6 reaction. Anyone have a similar experience?
Replies to "I was sucessfuly treated for PMR, ended in 3/23 with a slow taper of the prednissilone..."
@suetex I had two flares in the the first year after stopping steroids. It has now been 3 years with no return. My opinion would be that you are susceptible to the disease during that time. Sort of a resetting process. Your medical response I also believe is typical. They wait to see how far your willing to push it. Glad your better.
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@suetex if you still want to know you can make a written request for the records made during the procedure. The written request will not be ignored like a phone call can. Trust me they have a record of the procedure. If you use a portal for communication with the doctor, simply ask politely what you need to do it get a copy of the medical records of the procedure.