On Oct. 11, 2016 we came back from a 3 week vacation that consisted of a lot of hiking in the National parks. I noticed my right leg swollen, red and with a rash. I went to all sorts of doctors and tests to find out why. (vein mapping, blood clot, ecocardiogram, blood work, pap smear, stool testing, CT scan (this is when a mass was discovered in the deep part of my pelvic). this caused more testing to the abdomen, pelvic, legs, etc. I even had an incision by a surgeon to look at the mass. This was a waste of time since he did not see the mass from the incision he had made. He did take a biopsy of my lymph node in the right leg area and came back benign. All results were negative, benign, etc. Blood work perfect, Ovarian cancer and hep negative. Finally, I went to an oncologist suggested by my primary doctor. He did a NEEDLE biopsy and that is when we found out that I had pleomorphic sarcoma. I was signed up for radiation treatments until I saw a special surgeon (only 3 like them in the valley). He stopped the radiation and is facilitating getting me to Mayo Clinic. I am anxious to go to get this tumor out before it grows in size. It is 3.7 at the largest place. I have not had any treatments as of this date. I am anxious to get started, though. Does it take Mayo Clinic a long time to set up the doctors that will be assigned to you? Does anyone know about this?

Hi @me67,
I encourage you to start a new topic in the Cancer group about getting your first appointment in oncology at Mayo Clinic. I'll introduce you to members who can share their experience with you. In the meantime, you may also be interested in reading this discussion.

- Getting your first appointment http://mayocl.in/2iNdgpc

I had a pleomorphic retroperitineal tumor 16 years ago. They treated me first with chemo to try and shrink the tumor before they removed it. I have been cancer free for 16 years. It just returned. I would be glad to share any information I might have that would be helpful for you