Just started this (10/08/2025) medicine (Ohtuvayre), no results of any kind as of yet, I am praying that this will work....soon !! I'm to the point where I can barely do anything, I just would like to be able to function somewhat normally, I know I'll never be able to breathe like when I was 24-25 yrs. old again, but just to be able to run the vacuum, or make my bed, without almost collapsing would surely be a blessing !!
I will say prayers for everyone who suffers with this miserable affliction 🙏