I’m sharing my story to help others who may be starting or considering Repatha.
I’m a 40-year-old man, very active, with healthy eating habits and no underlying health issues other than familial high cholesterol. My doctor prescribed Repatha to lower my LDL levels.
After my first injection, I experienced mild fatigue but nothing alarming. Two weeks later, I took my second dose. Within a day, I developed flu-like symptoms: body aches, headaches, night sweats, and a low-grade fever. These symptoms lingered for several days despite rest and hydration.
By Thursday, I still felt unwell, and that night I coughed up bright red blood with clots and went to the emergency room.
At the hospital, doctors performed extensive testing bloodwork, viral panels, X Rays and a CT scan of my chest all came back normal. They could not identify any infection or clot, and the imaging looked clear. Given the color and appearance of the blood, the medical team could only infer that my bronchial passages were inflamed, possibly from a viral infection that standard tests didn’t detect and was causing the bleeding, as it wasn’t coming from the stomach, I had no abdominal pain.
I’m still following up with specialists to better understand what happened.
I share this experience not to alarm anyone, but to encourage awareness and careful monitoring
Hi, @olmoschris. Welcome to Mayo Clinic Connect. You’ve had a difficult time, I am so sorry.
Thank you for sharing your experience with Repatha.
How long has it been since your final injection? You mention following up with specialists. What specialists are helping you, and what is next?