Hello Mr. Chandler. I had exactly the same experience as a result of RP in October of 2021 at age 65. The pain did not start until almost 2 months after surgery. I described it slightly differently to my first doc. « As if I suddenly had one of those metal spring paper clips( clamps) applied to the end of my penis »
It then over time changed some into burning pain when urinating and constant pain at the tip. No UTI’s and in fact the infectious disease doc ran every test possible and found nothing.
My surgeon also dismissed me several times. PCP thought maybe nerve damage and at his suggestion I started taking NAC supplements. I tried another urology department at a different hospital. Cystoscopy caused me to almost jump through the roof even with lidocaine! He reported mild stricture however I had good flow. I went all the way to Mayo Clinic from New England and they did another cystoscopy and the flow check. It was fine. They prescribed self catheterization for 10 weeks with clobetasol titrating down from 3 times / week to once /week. Thought it might be Lichen sclerosis. I had no reason to believe that based on everything I read because I’m not fat nor do I smoke. Eventually I got a new urologist at home who told me he thought it was definitely not Lichen sclerosis but probably due to nerve trauma from the surgery but had no treatment answers other than to finish the clobetasol treatments because it may help with the pain and I think it did reduce the pain eventually by about half. It could have just been time. Anyway it took 3 years before I felt reasonably okay again.
The NAC may have helped but again not sure. I still take it. Currently I am 4 years post RP and doing much better. I go for psa checks every 6 months. I occasionally have slight pain at urination but nothing like before. No redness or constant soreness either. Sorry no easy answers here except time and I had the same experience with doctors as you . No one really knew and no one heard of such a thing.
Brice