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Starting BIG 3 tonight ….

MAC & Bronchiectasis | Last Active: 12 hours ago | Replies (43)

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@peterstl
I got the clofazimine from John’s Hopkins. I did ok on azithromycin and ethambutol. Then I added Nuzyra which causes ear problems and did one dose of arikayce thru nebulizer. That started my hearing problems. I stopped everything as of last Sat. Still have tinnitus but my hearing is fine. Did go to audiologist last week and testing showed I had some hearing loss, but I think I’m fine now. Doctor told me to wait and see if I go back to normal. I have Mac and abbesses, so worried what they’ll recommend for me.

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Replies to "@peterstl I got the clofazimine from John’s Hopkins. I did ok on azithromycin and ethambutol. Then..."

@fran22 I am also on Nuzyra and this is the first time I have heard this drug could give me tinnitus. Please let me know how you do after being taken off all of your medications. I wish you the best.