← Return to Neuropathy following Robotic Prostatectomy

Discussion
jchandler64 avatar

Neuropathy following Robotic Prostatectomy

Prostate Cancer | Last Active: 10 hours ago | Replies (13)

Comment receiving replies
Profile picture for heavyphil @heavyphil

Hey bud, Definitely neuropathy, but good luck finding an answer!
After my RARP, also at age 64, I lost my ability to have a normal BM. NOT constipation, but a disconnect between the urgency felt for needing to defecate and the ability to do so.
The surgeon ‘never heard of such a thing’ and the GI doc said he found nothing unusual after my colonoscopy.
Well, what was he gonna see? A nerve with a sign on it saying ‘here I am’? I have searched, Googled, etc for 6 yrs and I finally did find a reference on an IBS website.
The condition is called ‘anismus’ - basically a pelvic nerve dysfunction usually called by trauma or PREVIOUS PELVIC SURGERY! Hmmm…do you think a RARP qualifies for this?? I sure do…
Anyway, no one is going to be able to pinpoint the exact problem unless you go to a neurologist who specializes in GU dysfunction. They can slap electrodes on you and see if they can mimic that sensation you are feeling.
Once they do, they can possibly isolate that nerve bundle and either ablate it or inject it with steroid. Not easy to do, however…biofeedback or electrostimulation can also help.
On the brighter side, traumatized nerves can always heal but they do it at a much slower rate than other tissues. This can always happen… Best of luck in your search!
Phil

Jump to this post


Replies to "Hey bud, Definitely neuropathy, but good luck finding an answer! After my RARP, also at age..."

@heavyphil Thank you, Phil. It’s nerve wracking for sure! Lol. I find it difficult to believe that no one in my orb has never dealt with this issue. And, they seem to not want to do any research. When I speak to my surgeon he just scratches his head. My radiology oncologist is the one that referred me to pain management. The pain management doctor scratched his head as well. His answer was Gabapentin three times a day. 600mg per dose. Then trazodone at night. 225mg.
I keep getting told it will eventually heal. I don’t take a lot of comfort in that. When I’m in bed, it’s always the worst at bedtime, I wonder how much longer I can take it.
Thank you for sharing!