@branwhar, as you likely have learned, having a CDH1 mutation means that you are at high risk for developing an aggressive form of stomach cancer called hereditary diffuse gastric cancer (HDGC). The CDH1 mutation also puts women at risk for a certain form of breast cancer called lobular breast cancer. To help you connect with others, I pulled your comment into a discussion on its own into the Cancer support group and the Breast Cancer support group.

@branwhar, it sounds like you are in treatment for breast cancer and your team is recommending risk-reducing gastrectomy. Do I have that right?

I can imagine that you feel nervous about having a total gastrectomy. Here are a few related discussions that you may wish to read and/or comment in:
- Anyone familiar with a Gastrectomy (total stomach removal)?
https://connect.mayoclinic.org/discussion/gastrectomy-1/
- Total Gastrectomy for stomach cancer: What can I expect?
https://connect.mayoclinic.org/discussion/total-gastrectomy/
It's not an easy decision to undergo major surgery as a cancer prevention. I think @loispags @sarahinoz @biillgraves may have experience to share.

@branwhar, has the gastrectomy already been scheduled? Will you complete chemotherapy first? What questions do you have?