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Has anyone tried IVIG infusions for neuropathy?

Neuropathy | Last Active: Oct 12, 2025 | Replies (23)

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Profile picture for suetex @suetex

@laurenthewise1 (I love the name!) I am taken IvIg every 3 weeks for neuropathy caused by SFN caused by Sjogren's and I would have to say it's working because I should be in pain but I'm not. I also take LDN but I don't think it handles that kind of pain. I have no other explanation.

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Replies to "@laurenthewise1 (I love the name!) I am taken IvIg every 3 weeks for neuropathy caused by..."

@suetex I had thyroid cancer and had my thyroid removed and my right neck dissected. I have had peripheral neuropathy for over 15 years. Finally I am attempting to find out the cause of my neuropathy since idiopathic is not really a diagnosis. I'm wondering if the radioactive iodine that I had to take twice may have caused this or the many treatments I had for breast cancer and the double mastectomy. I had no radiation nor pills for that. Just many many biopsies and lumpectomies until I opted for the mastectomies.
Hope to find a cause soon because now my IBS skirt is making it impossible for any of my swallowed medication to work. Good luck to you and let me know further if you're IV treatment is working. I hope so.

@suetex
I am so happy to hear that it works for you!