chronic pain with myelomalacia
in 2018 had leg weakness so had ACDF surgery 3 discs C5-T1
diagnosed with myelomalacia (like a "dent" in the spine)
doc said i would get better but never 100%
i did get better could walk with out assistance and golf (not like i used to). then 12 months later legs got weak. got various treatments including stem cells. did not help. at 20 months post surgery was walking with a cane due to leg weakness. saw two neurologists that ruled out any other cause. they were surprised i was getting worse. then the pain started. it was a couple hours a day most days. now 3 years later i feel like ability to walk is worse. and pain several hour most days. OTC pain pills don't help much and docs didn't give me anything better.
life is really hard right now. walk with a cane short distances. i exercise 40 minutes total per day treadmill and rower. i never improve.
sent file to mayo clinic last year they declined to see me.
going to see a pain doctor but i am skepitcal.
i can't do anything around the house, wife and kids do everything that i used to do
fighting hard to not get depressed
Interested in more discussions like this? Go to the Spine Health Support Group.
Connect

Thank you
can i ask what your condition was that you got treatment for?
and what was mayo able to do for your pain?
thanks