Connect
← Return to Spinal cord stimulator support
Discussion
Spinal cord stimulator support
Chronic Pain | Last Active: Oct 16 1:00pm | Replies (130)Comment receiving replies
I’ve had one for 2yrs now for CRPS in my legs. Lately I’ve been turning mine off and have found that I’m in more pain with it on then when it’s shut off. I’m thinking I want it taken out! But no one will tell me the risks of getting it removed, my dr said that scar tissue grows over the leads so I’m scared to have someone cutting through my spinal tissue/scar tissue😔
Replies to "I’ve had one for 2yrs now for CRPS in my legs. Lately I’ve been turning mine..."
@daxel79 A competent neurosurgeon should have no problem removing your scs. Even the scar tissue should be able to be removed in order to access the leads.
Connect
@daxel79
I felt the same and im suffering from exactly that.
At least your Dr was honest. I was met with a wall of SILENCE from Drs. But i trusted my gut and knew it had to come out.
I have pain from Celiac Plexus from an untreated abdominal injury...I was left 6 yrs in horrific pain
because it didnt show on scans, so I have severe CRPS. This has made my recovery very difficult . It was a HARD decision because finally after 1 year I was recovering from the damage SCS did to me early on ( spasms, nerve damage, many bulging discs...related or not who knows).
The only advice I can give you is make sure you have an excellent surgeon remove it. Fortunately my Pain Dr left, so I had to find a new team and my 1st class surgeon came with them.
For me the concerns of more bleds and migrating leads led to my decision . I am RELIEVED it is out. I also had terrible pains with it on. Weight up your pros and cons carefully. My surgery was brutal and so is my recovery but i KNEW I needed it out.
Pls keep me us updated. You are welcome to PM me. Your situation is probably not as severe as mine, so dont be put off by my situation. I have had CRPS for 17 years . Others recover well and quickly.
Best of luck.