Does anyone have any questions about papillary thyroid cancer?

Posted by lindaadele @lindaadele, Aug 30, 2025

I am a 25 year survivor of papillary thyroid cancer and have been volunteering for many years answering many questions from people who have papillary thyroid cancer and have questions about it. I would be happy to answer any questions from people who have concerns about thyroid cancer.

Interested in more discussions like this? Go to the Thyroid Cancer Support Group.

Profile picture for bellarose17 @bellarose17

@rashida those are the same symptoms I was having on Levothyroxine. I have started on Synthroid 3 days ago and already have some improvement. Did you have any insomnia?

Jump to this post

@bellarose17 I will be honest with you these medication‘s affect every single person so so differently that it’s hard to say with the stories I can understand because I have a lot of situation’s with many many medication‘s!!! I don’t know why but for some reason I never have problems with the Synthroid and the other medication for thyroid cancer I don’t know why but who knows everybody’s body is different but I would do is discuss the situation with your doctor and see if the doctor has any suggestions for you moving forward as far as medication’s for you and anything else that would help you out.

REPLY
Profile picture for bellarose17 @bellarose17

@rashida what type of side effects were you experiencing?

Jump to this post

@bellarose17 my suggestion would be to please speak to your doctor about the situation’s you were having with your medication and ask your doctor what his suggestion would be for you can’t hurt. My very best wishes to you moving forward!!!

REPLY
Profile picture for bellarose17 @bellarose17

@rashida those are the same symptoms I was having on Levothyroxine. I have started on Synthroid 3 days ago and already have some improvement. Did you have any insomnia?

Jump to this post

@bellarose17 yes I do, but I don’t know whether Synthroid is the cause. I have been an insomniac for several years and I can’t remember if I already had it before Synthroid, or after I started taking it.

Being retired, I take insomnia in stride. I sleep in every morning and don’t feel guilty. After all, my time is my own now. lol.

REPLY

Hi, This was very nice of you to offer your help!
I was diagnosed with papillary thyroid cancer 2 1/2 yrs ago, and am not a good candidate for surgery. Immunotherapy, nutrition, prayer, and a healthy lifestyle have helped a lot and my tumor numbers are down! I'm paused on Keytruda due to side effects and am curious about CAR-T clinical trials for thyroid cancer at Mayo Clinic. I heard about it through an article (can't post the link cause I'm a new member), but it's entitled: Unleashing CAR-T cell therapy to destroy solid tumors in thyroid cancer.

Anyone have more information about this trial? Thank you!

REPLY
Profile picture for lizzymbee @lizzymbee

Hi, This was very nice of you to offer your help!
I was diagnosed with papillary thyroid cancer 2 1/2 yrs ago, and am not a good candidate for surgery. Immunotherapy, nutrition, prayer, and a healthy lifestyle have helped a lot and my tumor numbers are down! I'm paused on Keytruda due to side effects and am curious about CAR-T clinical trials for thyroid cancer at Mayo Clinic. I heard about it through an article (can't post the link cause I'm a new member), but it's entitled: Unleashing CAR-T cell therapy to destroy solid tumors in thyroid cancer.

Anyone have more information about this trial? Thank you!

Jump to this post

Welcome, @lizzymbee. I found the article your referring to:
- Unleashing CAR-T cell therapy to destroy solid tumors in thyroid cancer https://cancerblog.mayoclinic.org/2024/05/21/unleashing-car-t-cell-therapy-to-destroy-solid-tumors-in-thyroid-cancer/

To find out more about the status of this research by Drs. Kenderian and Copland III, I recommend contacting a research coordinator at Mayo Clinic Clinical Research https://www.mayo.edu/research/clinical-trials
You can either fill out the online form or call them.
Cancer-related trials contact form https://www.mayo.edu/research/forms/cancer-clinical-trials
Phone: 855-776-0015 (toll-free)

Here's more information about Dr. Copeland's research https://www.mayo.edu/research/labs/cancer-biology-translational-research/overview

I'll be interested to hear what you find out.

REPLY
Profile picture for Colleen Young, Connect Director @colleenyoung

Welcome, @lizzymbee. I found the article your referring to:
- Unleashing CAR-T cell therapy to destroy solid tumors in thyroid cancer https://cancerblog.mayoclinic.org/2024/05/21/unleashing-car-t-cell-therapy-to-destroy-solid-tumors-in-thyroid-cancer/

To find out more about the status of this research by Drs. Kenderian and Copland III, I recommend contacting a research coordinator at Mayo Clinic Clinical Research https://www.mayo.edu/research/clinical-trials
You can either fill out the online form or call them.
Cancer-related trials contact form https://www.mayo.edu/research/forms/cancer-clinical-trials
Phone: 855-776-0015 (toll-free)

Here's more information about Dr. Copeland's research https://www.mayo.edu/research/labs/cancer-biology-translational-research/overview

I'll be interested to hear what you find out.

Jump to this post

@colleenyoung this new cancer therapy sounds so so complicated to me maybe too complicated! If it were me and I was really considering it as a good option for my thyroid cancer I would probably want to go to a really really fantastic thyroid cancer doctor and get their opinion!!!

REPLY
Profile picture for Colleen Young, Connect Director @colleenyoung

Welcome, @lizzymbee. I found the article your referring to:
- Unleashing CAR-T cell therapy to destroy solid tumors in thyroid cancer https://cancerblog.mayoclinic.org/2024/05/21/unleashing-car-t-cell-therapy-to-destroy-solid-tumors-in-thyroid-cancer/

To find out more about the status of this research by Drs. Kenderian and Copland III, I recommend contacting a research coordinator at Mayo Clinic Clinical Research https://www.mayo.edu/research/clinical-trials
You can either fill out the online form or call them.
Cancer-related trials contact form https://www.mayo.edu/research/forms/cancer-clinical-trials
Phone: 855-776-0015 (toll-free)

Here's more information about Dr. Copeland's research https://www.mayo.edu/research/labs/cancer-biology-translational-research/overview

I'll be interested to hear what you find out.

Jump to this post

@colleenyoung Thank you so much for your response! Your information is invaluable in my finding out more . I'll let you know any updates...
TTFN! Marie (aka @lizzymbee)

REPLY
Profile picture for rashida @rashida

@bellarose17 yes I do, but I don’t know whether Synthroid is the cause. I have been an insomniac for several years and I can’t remember if I already had it before Synthroid, or after I started taking it.

Being retired, I take insomnia in stride. I sleep in every morning and don’t feel guilty. After all, my time is my own now. lol.

Jump to this post

@rashida Hei, i have to take a sleeping tablett because i can't sleep and it drained out my energy.

REPLY
Profile picture for meghansa65 @meghansa65

@rashida Hei, i have to take a sleeping tablett because i can't sleep and it drained out my energy.

Jump to this post

@meghansa65 I stopped taking sleeping pills because they just make me feel very dopey in the morning.

REPLY
Profile picture for rashida @rashida

@meghansa65 I stopped taking sleeping pills because they just make me feel very dopey in the morning.

Jump to this post

@rashida i know but i can¨t take a rest from thinking of my cancer and death. How are you? are you in any treatment?

REPLY
Please sign in or register to post a reply.