is my pain a side effect of the emgality injection?

Welcome @eleonora, It's great to hear that the Emgality has given you some relief and reduced the intensity of your migraines. I'm sorry to hear that they still happen. I thought you might like to read through the comments from other members being treated with Emgality while you wait for members to respond. Here's a link to the comments - https://connect.mayoclinic.org/search/comments/. There have also been a few members who have commented on Topomax and joint pain - https://connect.mayoclinic.org/search/comments/.

Here is some information on the drug that might be helpful.
-- Emgality: Dosage, side effects, uses and more...
https://www.medicalnewstoday.com/articles/emgality
Did your neurologist offer any suggestions for new symptoms? Have you discussed the joint pain with your primary care doctor?

I am sorry you’re suffering from so much pain at such a young age. I do have a suggestion however that might explore the reason for your new onset of intense joint pain, fatigue, hand symptoms and tremors. You are at an age when autoimmune diseases often start. Chronic migraines can be an initial symptom and then other symptoms can occur later. I would suggest asking your PCP to do some screening bloodwork for autoimmune disorders. There are many but lupus and Rheumatoid arthritis are the most common that affects joints and cause fatigue. Some screening bloodwork including CBC, metabolic panel, ANA. RA factor, sed rate and CRP are good screening tests and if abnormal levels show up, a referral to a rheumatologist would be indicated to identify the specific problem. It may be that your migraines are a part of a bigger problem that is developing. If that’s the case, ( I hope not), better to identify it early and get treatment started. Please let us know what transpires. I am glad the injections are at least helping your migraines. Good luck and I hope this gets figured out soon and you feel better!

Hi! Thank you a lot for your kind reply! I did go to a rheumathologist a few weeks ago, but I was told my symptoms weren't "enough" to indicate an autoimmune disease. However, if things get worse I will definitely insist on being tested. I will keep you updated, and thank you again for the time you took to reply!

I was just looking for answers myself. I also started with migraines serveral years ago, around the same time I started taking amovig, I got really sick, I couldn’t drive bc it felt like I was in a car wash driving down the road, I believe my blood pressure was dropping and made me severely nauseous and had horrible flank pain and they couldn’t find anything wrong aside from a renal cyst that was just a benign fluid sac. That was right before Covid though and I got really sick like I thought I was going to die. I used to go to the gym 4-5 times a week and was very active. I haven’t been the same since all of that. They gave me a fibromyalgia diagnosis but I think it’s something more. I am in so much pain all the time and no one believes me bc all my tests come back normal even though I’ve had all kinds of odd flare ups and rashes and weird pain. Nothing is the same.

I apologize in advance if someone already asked this…

Has anyone tried Emgality and gotten really bad body aches in certain places? If so what are you doing about it?

My shoulders, upper back, ribs and (worst of all) my collar bones are incredibly agitated. I’ve done massage, chiropractic adjustments, hot and cold therapy, myofacial release and OTCs. Nothing seems to be working.

Thanks for reading/sharing!

@micpanda

I have had same symptoms started Emagility first subcut injection on 12/10 & the first 4-5 days i didnt really notice too much , but after that ive just had 7 days of debilitating pain similar to what you have mentioned here. I'm already living on pain killers as i have serious nerve impingement from a MVA 3 yrs ago in upper & lower spine plus impinging bursitis both shoulders, so I'm already living in agony but those 7 days were debilitating. I have increased dizzy spells similar to vertigo which were only mild prior to, increased ear ringing, decreased circulation, fatigue which was not as extreme prior & probably 10 other things that i cant think of atm. I will be ceasing Emgality .

Hi @eleonora. Your pain sounds terrible. I hope these side effects stay aide or are explained. Being in the dark is hard.
I too suffer from headaches and migraines. Last week, I took my third dose of Emgality. My new symptoms have been short-lived and moderately tolerated; dizziness, numbness and tingling in fingers, and shivers (like when you feel someone behind you.) I have a lot of your other symptoms, but I had them prior to starting Emgality.
I was just diagnosed with central sensitization syndrome (CSS). I’m curious, and I don’t know how this works, but could this pain have already been present, but your body focused on your intense migraines? I say this because it seemed that way for me when I would tackle one pain, another would show up.
Good luck on your journey!

I hope this is already resolved! If not, I’d encourage you to read about endometriosis. One in ten women have it, it can cause debilitating pain not just in and around the reproductive system but lots of other places -including referred neck and shoulder pain (particularly right sided pain), and there’s typically an 8-10 year (yes year) delay in diagnosis. There was also a recent study on whether anti-cgrp drugs - emgality is one / might be able to treat endo, and seems to show there is a common pathway. Migraine and endo commonly co-occur.