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Melanoma & Skin Cancer support: Introduce yourself and connect
Melanoma & Skin Cancer | Last Active: 3 days ago | Replies (113)Comment receiving replies
@mlb66: You sound very well
prepared for the road ahead. I’ve admittedly had some bumps and going through a bit of a difficult time right now although a clear line cannot be directly drawn to my immunotherapy. One thing I’ve learned after being diagnosed with metastatic melanoma is to be prepared for the unexpected so this is just one of those times. Another thing I’ve learned even before this is to always be your own health care advocate - use reliable sources to investigate medical issues you may encounter and take an active role in your care, seeking specialty advice when needed.
Let me know how you found your initial infusion at Mayo - I hope you were pleased and have a favorable response to treatment!
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@grammato3: Sorry to hear you are hitting a rough patch right now, sending you strength and good vibes. Hopefully they can figure out what may be causing your setbacks. We just have to learn from the unknowns going forward, and hopefully with the help from others, be as prepared as one can be; not an easy task though.
My first infusion went very smoothly last week, but what they did say was spot on regarding side effects. With the nausea and fatigue, I was pretty much out of it Thursday and Friday. As you mentioned, still waiting on that unknown that may pop up...as of today, Saturday, I feel pretty good. Not much of an appetite, but do not have that exhausted feeling.
Stay strong!