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Question Everything!

Cancer | Last Active: 4 days ago | Replies (5)

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Profile picture for pml @pml

Hi,
Wow! What an awful ordeal you and your husband went through no thanks to the doctor! Good for you for persevering! That was fantastic! I admire you for doing all that. I had a similar problem with my husband's treatment when he had lung cancer and was given Keytruda. It nearly killed him! He got pancreatitis which is a known side effect of Keytruda. He quit the Keytruda treatments and the cancer doctor had a fit and wouldn't see him even though he was so ill! Keytruda cost $25,000 per infusion at that time and my husband had just been approved for 6 more months of it by our insurance. I think that had something to do with the cancer doctor's unhappiness that he was stopping the treatments. However, our primary care doctor got him to the right specialist and he recovered. Needless to say, we changed cancer doctors.

I always looked up the side effects of all my husband's medications and treatments. It really helped to know what was occurring at the time and why. Often I would come up with a researched home remedy for a symptom that my husband had developed like a hoarse voice and ask the doctor if he should gargle with hot salt water etc. Every time our primary care doctor agreed with what I had found in my research. We need to continue to pursue our own and our loved ones health and also follow what the doctor suggests unless it doesn't work right. Doctors today are really overworked and often don't have the time to research a particular patients' symptoms thoroughly. What you are doing is very helpful to the doctor and your husband. Keep it up!
PML
P.S. Thanks for mentioning Eeyore from Winnie the Pooh! I had forgotten about him!

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Replies to "Hi, Wow! What an awful ordeal you and your husband went through no thanks to the..."

@pml

It's so hard sometimes, but our husbands are living proof that speaking up, even if we get a "stink eye" from someone, is worth it.

Thank you, my friend!!!