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Living with lung cancer - Introduce yourself & come say hi

Lung Cancer | Last Active: Sep 25 12:58pm | Replies (1044)

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@margot69

I guess I haven't updated for a while. I have the Large Cell Neuroendocrine Lung Cancer. Had my last Chemo in April, Carbo/Etroposide. PET was stable. Two more treatments were cancelled as my blood work was staying too low. My Onc at Stanford wanted another PET in June and a repeat brain MRI. My local Onc was not going to do one. I had been receiving no treatment. PET showed progression. Brain MRI now shows several spots and whole brain radiation is recommended. I had been started on Abraxane and Keytruda, had one infusion. I am to start the WBR next week then resume the Infusions. Doctor said it woukd be too hard on me to do all at once. There is no treatment protocol for this cancer. Has anyone had WBR and treatments stopped until you were done with radiation? What side effects did you have?

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Replies to "I guess I haven't updated for a while. I have the Large Cell Neuroendocrine Lung Cancer...."

Hi @margot69, so good to hear from you again. I was wondering about you. @karen43 and @lady1lake have experience with whole brain radiation therapy (WBR) for metastasized lung cancer. (https://connect.mayoclinic.org/discussion/small-cell-lung-cancer-1/?pg=6#comment-263340)

Did your oncologist talk to you about dental care before starting WBR?