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Profile picture for snowyowl @snowyowl

I am a DES daughter based in the UK, born in 1958. I have had multiple issues, cervical polyps, stenosis and adenosis. Infertility, finally conceived with GIFT, Prem birth at 33 weeks by emergency C section. My mother died from DES related breast cancer. Unlike the USA we don't get monitored! I am currently trying to persuade my GP this needs to continue. I also have a rare oestrogen driven lung, lymphatic & kidney disease, known as lymphangioleiomyomatosis (LAM) categorized as cancer by WHO but not by British NHS. I have always felt the 2 conditions are connected and would love to hear from anyone else who is thus affected. Thank you

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Replies to "I am a DES daughter based in the UK, born in 1958. I have had multiple..."

@snowyowl I have not seen these 2 conditions reported by the NIH in the US. DES Info Association has more information.