← Return to Supplements Part 2: Collagen supplements and EDS/HSD

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@anjah
Hi, My name is Julie, I have been suffering terribly for 19 years from Sjögren's .
I was ignored by my doctors
every time I told them about my severe muscle and joint pain. I also felt a terrible
exhaustion that I couldn't
fight. 19 years later I just found out that I have EDS,
with dozens of symptoms.
My doctors just brushed me off, probably because they didn't know what it was. They acted like I was just some hysterical female. One day, my husband brought me some multi source Collagen Powder saying that maybe it would help my pain. At this time, I had had
an auto immune attack in my ears, which took 40% of my hearing in the end. The only thing my team of physicians did was give me huge amounts of antibiotics and steroids. I ended up being unable to leave my room, for a year because of the exhaustion and terrible pain everywhere, joints and muscles. Those drugs are terrible for autoimmune disorders and I literally began to think that I wasn't going to make it. So when my husband brought me the Collagen Powder, I took it right away, twice a day. Within a week, I was up and
getting around my house. It
started helping with the pain, so quickly that I couldn't believe it. After a few weeks, I was able to leave my house and play with my young daughter.
I kept feeling less pain, until it was mostly gone or on bad days, not that bad. I actually stopped taking it bit by bit, and I felt okay. When it does start coming back, I just start taking it again and it gets better. I have told two friends who have rheumatoid arthritis about it, and they won't live without it anymore. We all had very good pain reduction using this Collagen powder. I'm perplexed as to why the there aren't any positive
comments on this site. I hope you find something that helps you feel better too. 🙂

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Replies to "@anjah Hi, My name is Julie, I have been suffering terribly for 19 years from Sjögren's..."

Hello @julierickett and welcome to Mayo Clinic Connect. I appreciate you sharing your experience with Sjögren's. I'm sure you feel relieved to have found something to relieve your pain, especially after 19 years.

You mentioned that an autoimmune disorder attacked your ears. Could you provide more details about what type of ear problem you had? Did it affect your balance or just your hearing?