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Anyone dealing with oral lichen Planus?

Autoimmune Diseases | Last Active: 16 hours ago | Replies (25)

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New to olp diagnosed in May this year. Struggling to find help and answers. One question is how are you certain of a trigger? For example if I were to drink lemon juice my mouth would be on fire, but if I eat an apple (also acidic) my mouth is not on fire. Do the triggers happen internally and externally? I just did a 14vday prednisone taper which calmed down the irritation and pain but all the gum tissue disruption is still there. So it sorta worked? Any input is great, thank you.

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Replies to "New to olp diagnosed in May this year. Struggling to find help and answers. One question..."

@zinnia55
Hi, I have OLP also. It tends to flare up and down. I always have a level of rawness in the tissue. It feels like the inside of my mouth was rubbed down with sand paper. At times my lips sting too. I also break out in lesions. Often there are lesions in the same areas each time.
I completely avoid citrus fruit and absolutely anything I think may be spicy., also mint. I'm very careful with salt too. There are days when even banana, avocado and soft foods you wouldn't expect would cause discomfort. The things that sting and are painful etc....can cause a flare up in my mouth. I want to say, it's very important you take in enough nutrients your body needs. I was taken to the hospital with serious symptoms which turned out to be a very critically low level of sodium. I lost consciousness. People don't realize how important sodium is to the body. Coma and brain damage can occur. I had no idea it was my sodium level making me so sick. Unfortunately my doctor's office had done blood tests a few days prior showing my sodium level was critically low and they failed to notify me.
Unfortunately I also have Esophageal Lichen Planus which is extremely rare. In addition I get Lichen Planus on my skin.
Although, the OLP is what really can make it hard for me to eat. Now if I can't hardly eat I will mix a protein powder with milk and drink that. If I ever suspect my sodium level is compromised I will put some salt in my hand and lick it. This is the fastest way to get salt in your other than drinking electrolytes which I also keep on hand and carry with me when I go out. I buy single serving packages on Amazon.
Also, I choose not to take steroids. If I got to a critical point with lesions I would have to.
FYI....many people don't realize that OLP, ELP etc...is an autoimmune disease. Your body is attacking the mucus membranes.
I want to mention that stress can definitely cause flare ups too. Stress and emotional upsets can definitely effect your compromised immune system.
I hope this helps you.
Take care ❤️

@zinnia55 I was at a funeral luncheon recently. Have been carful what I eat cuz of olp and also going thru the implant route. I took a few weeks hotdish scoops that had tomato base. Boy did I pay for that! My mouth really flared up. Someone mentioned peppermint. I always have after dinner mints as my mouth gets so dry. At this point only relief I get is liquid lidicain. Helps for awhile. As for the mints, I’ll stop them. Sometimes chocolate will bother my mouth, so stay away from that. I know there’s no cure for olp, but love to hear what others do to help. Thanks. 😁