Connect
← Return to Starting BIG 3 tonight ….
Discussion
MAC & Bronchiectasis | Last Active: 12 hours ago | Replies (43)
Comment receiving replies
I was also told that I needed to start taking Clofazimine. However, Clofazimine is not sold in the Untied States. How will you obtain it? I am also on Nuzyra and Amikacin. I was taken off of Amikacin because of hearing issues and tinnitus. I am currently on Nuzyra, Clarithromycin and IV antibiotic Imipenem. I am interested to see how your hearing does after being off all medications.
Replies to "I was also told that I needed to start taking Clofazimine. However, Clofazimine is not sold..."
Connect
@peterstl
I got the clofazimine from John’s Hopkins. I did ok on azithromycin and ethambutol. Then I added Nuzyra which causes ear problems and did one dose of arikayce thru nebulizer. That started my hearing problems. I stopped everything as of last Sat. Still have tinnitus but my hearing is fine. Did go to audiologist last week and testing showed I had some hearing loss, but I think I’m fine now. Doctor told me to wait and see if I go back to normal. I have Mac and abbesses, so worried what they’ll recommend for me.