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← Return to NET's Metastasis to Brain
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Neuroendocrine Tumors (NETs) | Last Active: 20 hours ago | Replies (14)
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Hey Mark, I've had Octreotide, Lanreotide, and SI resection surgery. I'm currently doing monthly Lanreotide shots. I have not had a metastasis to the brain (yet anyway). How your feeling? Hope you get approval for the PRRT.
Replies to "Hey Mark, I've had Octreotide, Lanreotide, and SI resection surgery. I'm currently doing monthly Lanreotide shots...."
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jlsgt:
It has been a real journey - have learned that one must be the best advocate (in concert with a supportive care giver). I believe questioning (with respect) based on research is critical.
The metastasis to my upper body was an unexpected shock.
I am fatigued and battle that daily.
Thanks for responding & for the PRRT support -
All my best,
Mark