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Living with lung cancer - Introduce yourself & come say hi

Lung Cancer | Last Active: Jan 22 8:18am | Replies (1013)

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@bluelagoon

@reibur1951 @alamogal635 The other thing about IU Simon- when I was doing my homework last year they came up as the best in Indiana. Kinda makes you think that that they, like Mayo, may give more honest answers because they have more confidence in what they are doing! (I hadn't made that connection before but it really jumped out at me here.)

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Replies to "@reibur1951 @alamogal635 The other thing about IU Simon- when I was doing my homework last year..."

Yes they are in my mind and I can't toot my horn enough... all I wanted was the "BEST" and out of the system up here in Northern Indiana and out of the Oncology/Hematology that his father was in and I was biting my tongue - his father's dr talked in apologies; would not discuss - and it was "you take this medicine because I say so side effects be dam" he pushed medications with out talking side-effects and their effect on his A-Fib and told me outright all I gave a dam was about the $$$ and not the person - well when I seen 95-98% of the side effects of the drug; and the drug said it affected the heart rate, & he came home and slept 90-95% percent of the time only wanting to get up to go to bathroom, dr's appointments and to eat if he felt like eating. he kept "badgering" him to take the medications - badgered him into taking presdisone which sent him into instant foot edema and congestive heart failure landed him in the hospital for a week and a change of heart medication to control his A-fib which was 120-130+ NO I did not want this type of dr. for his son and the practice is scattered over all over northern Indiana with satellite office in other communities with hospitals Finally after seeing his sons treatment by drs at Simon he was wanting to go to IU Med but it was to late when I finally got him there by driving him myself - the last time had him to ER in one of our local hospitals they refused his request to be transferred to IU Med/Methodist I know the outcome probably would not of been different but he would not of been in the misery he was in he was from Nov. 2016- to his death on Jun 28th 2018 not making red blood cells tho it was implied it was not cancer but the father tested positive for JAK2 V617F mutation and this was never fully explained and clearly!