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Living with lung cancer - Introduce yourself & come say hi
Lung Cancer | Last Active: Sep 25 12:58pm | Replies (1044)Comment receiving replies
Update - Biospy -& that it was consistent with his lung primary sent to Nantomics which was the goal of Precision Genomics 5-6 weeks for results; they said the LT Axilla Lymph node was okay to do even tho it is RT supraclavicular neck lymph node that is the problem this still mystifies me since its not the one responding to the treatments had so far and the LT Axilla Lymph node has responded and remained stable and not started to re-grow like the RT supraclavicular neck lymph node
the radiation making mask/simulation was yesterday back on May 1 for whatever and then treatments begin for 10 days on May 5-10; 13-17. Drs appointment/infusion canceld for 29th because of radiation and re-scheduled for May 24th Dr. / Infusion of Prembro / KEYTRUDA® (pembrolizumab) There will be an appointment somethine in June for the Genomics.
Going to try to do a daily trip as motel room & boarding the dog & cat will be 967 not counting a meal a day - for a week - can do a daily trip gas/meal/valet parking for 453 and if works out like yesterday the valet parking is "validated" so give $50 to play on SO far no help on expenses has been offered there was offer for finding motel room but the options they had could not bring the dog (dachshund) and cat (siamese) with us.... So $ wise its cheaper to make daily trips....
Only concern is the car but it goes to pot in hand basket no loss for what paid for and whats wrong with and friends father being lied to about the condition we more than got our use out & what we paid for it
besides having to withing first week of have to buy a battery & alternator & then the brakes & left rotor & drum and
Medically its made
41 trips to Plymouth (53 miles round trip)
12 trips to Culver (20 miles round trip)
1 tp South Bend/Mishakawa (100 miles round trip)
55 to Indianapolis (200 miles round trip)
besides all the local trips for Grocery and shopping.
Just praying that the car and me can out last the month of May and really the car has to hold on till after October...
Replies to "Update - Biospy -& that it was consistent with his lung primary sent to Nantomics which..."
Hello @reibur1951
So good to read your post and update. You continue to be a very loyal friend and I pray, as does @alamogal635, that your car and finances hold up for these upcoming May treatments.
You are a good planner and definitely organized. I get the feeling that your friend's family has not thanked you for your help for this cancer survivor so on their behalf, let me say thank-you for your help.
You are providing more than transportation, you are providing hope! We need more people in our world to provide this essential element of hope.
@reibur1951- Good morning. OMG Can you believe these expenses? Is there a way that the family will compensate you for the car? Or is it theirs?
What kind of radiation are they planning? I had to have a form made for my SBRTs. Masks are often made for precision. There are so many!
I'm thinking of how incredible you are. You deserve an award. Have you had a chance to have any sort of break? Maybe for a spa day or even a pedicure?
I done it 1000 miles under my A$$ this week for 252.14 for gas/snack and one meal per day did without the meal today; and saved 714.14 if had gotten a motel & boarded Aries (the dog) & Lucy Lou (the cat) and t did not figure in the meals for the week. Reprieve for 2 days and start over....
So far so good really not tired... even been up each day before the alarm went off...
He seen dr. (radiologist) wed after treatment said some noticeable change... not really sure I do notice he holds that arm differently than the other ; sees dr. (radiologist) on wed not sure if again but scheduled for regular oncologist/lads/infusion no schedule for June as yet -
Not got anything done here at home but will try to without over doing....
Still ceases to amaze me somewhat the sister and brother-in-law has never bothered to calling once this week to see how things are going if car is holding up, if anything is needed - oh i know the both work but....
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@reibur1951 Will be praying with you about the car holding up. Glad you have things organized, but gosh it all sounds expensive--not that it is all not worth it! You have a long haul to get all this done. Take it one thing at a time and it won't seem so overwhelming. I will be thinking good thoughts your way along with prayers. Keep us posted.