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Living with lung cancer - Introduce yourself & come say hi
Lung Cancer | Last Active: Jan 22 8:18am | Replies (1013)Comment receiving replies
Yes when I discovered i immediately e-mailed Maggie the oncologist/clinical study nurse she consulted regular oncologist and he felt this would still provide good information. and she said I told them that as well, but I think they thought the axillary node would be safer to biopsy.
We just assumed since it was the supraclavicular neck lymph node that was not responding that would be the one again biopsied - its been the one biopsied the last 2 times one done in April 2018 after the 12 weeks of chemo and the other done within the last 6 months - they done the LT Axilla Lymph node in Oct/Nov 2017 when they found the cancer involved the lymph nodes of the chest and when examining after the PET found it and the supraclavicular neck lymph node swollen (which is now more visible than back then) they done the LT Axilla Lymph node first and said if it came back positive they would not move up to the supraclavicular neck lymph node that day -
To me I think it would of been the supraclavicular neck lymph node since from what was discussed about the Genomic testing about mapping out the tumor characteristic and why it was not responding and if there is any treatment/chemo that is available but what do I know I am only a common lay person... there is follow up after the test results are in
Yes there is a lot of medical terminology... but not new to it mother was a nurse, I took the EMT course for my home town in fall of 1984-Jan 1985; done non-paid volunteer training was the top of my class and and was told I got the highest scores of anyone of the service on the state exam Maybe it will help me to understand the DNA test i took for my family genealogy of which with all goign on I have not had time to study but its out there of others to contact me in my family research which is slow at this moment too.
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Update - Biospy -& that it was consistent with his lung primary sent to Nantomics which was the goal of Precision Genomics 5-6 weeks for results; they said the LT Axilla Lymph node was okay to do even tho it is RT supraclavicular neck lymph node that is the problem this still mystifies me since its not the one responding to the treatments had so far and the LT Axilla Lymph node has responded and remained stable and not started to re-grow like the RT supraclavicular neck lymph node
the radiation making mask/simulation was yesterday back on May 1 for whatever and then treatments begin for 10 days on May 5-10; 13-17. Drs appointment/infusion canceld for 29th because of radiation and re-scheduled for May 24th Dr. / Infusion of Prembro / KEYTRUDA® (pembrolizumab) There will be an appointment somethine in June for the Genomics.
Going to try to do a daily trip as motel room & boarding the dog & cat will be 967 not counting a meal a day - for a week - can do a daily trip gas/meal/valet parking for 453 and if works out like yesterday the valet parking is "validated" so give $50 to play on SO far no help on expenses has been offered there was offer for finding motel room but the options they had could not bring the dog (dachshund) and cat (siamese) with us.... So $ wise its cheaper to make daily trips....
Only concern is the car but it goes to pot in hand basket no loss for what paid for and whats wrong with and friends father being lied to about the condition we more than got our use out & what we paid for it
besides having to withing first week of have to buy a battery & alternator & then the brakes & left rotor & drum and
Medically its made
41 trips to Plymouth (53 miles round trip)
12 trips to Culver (20 miles round trip)
1 tp South Bend/Mishakawa (100 miles round trip)
55 to Indianapolis (200 miles round trip)
besides all the local trips for Grocery and shopping.
Just praying that the car and me can out last the month of May and really the car has to hold on till after October...