@sarahlynn1960
I use the Bololo and don't boil in addition. I checked the temp in the Bololo initially to confirm adequate temp and feel ok with mostly just rinsing equipment before I put in. In addition, Faulkenham says Mac doesn't grow well on the neb cup he tested and it's one of harder germs to kill. Caveat-I don't have MAC and have little sputum, therefore, don't worry about reinfection. I'm not sure if I'd be more careful if I did.
I think its important to clean devices of sputum or other fluids before sanitizing it though. If I'm having post nasal drip and coughing that out, like this a.m, I soak it in soapy hot water then rinse in hot water. More often, I rinse it thoroughly.
The one thing that bugs me a little about the method is that there's no way to close vents for storage. At first, I put paper towels over them, but have stopped.
It seems to me that people read the information, listen to the various talks and figure out their system and tend to change as
we go along. I love the Bololo partly because I don't like handling so much boiling water. Good luck! Hope you love it, too!
@pacathy why did you stop covering the vents after it's dry and the machine has cooled?
I've become as overwhelmed in the past few days as I was on the first day of diagnosis just a little over 3 months ago on the best way to make sure we are cleaning and sterilizing to reduce the possibility of infections and kills germs on our equipment. I understand different groups have different ways based on their comfort level - I'm just having trouble wrapping my head around all the science surrounded with NTM's, MAC, etc. luckily so far I'm infection feee just dealing with Bronchiectasis like that isn't enough on its own 🤦♀️ I do appreciate this group for what feels more like a true support group. Learning who to trust about information has been one of my biggest hurdles. I've always been a huge personal patient advocate for myself and questioning is how I feel comfortable in my efforts to gain more knowledge. But so many have so many different answers 😢