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Living with lung cancer - Introduce yourself & come say hi

Lung Cancer | Last Active: Sep 25 12:58pm | Replies (1044)

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@reibur1951

Back from Indy... course of treatment in progress of changing...

The main tumor in lung and the rest of the lymph nodes one in the left arm pit and chest are are all stable and not growing… as of yet - the Dr. is satisfied with what the Pemnrolizumab (Keruda) is accomplishing there

The question is why has it not phased the Supraclavicular lymph node - it had been shrinking but done a complete about face.

BUT the Supraclavicular lymph node is still acting up it is near the jugular vein too & increasing in size along with some near it So once again in less than 2 months (6 weeks) kicks him out of the clinical study

he did not receive the Chemo (Docetaxel) today because of the continued growth of the Supraclavicular lymph node

Dr. is keeping him on the Pemnrolizumab (Keruda) but the clinical study will not pick up the cost of the drug had to get
pre-approved through his insurance for that Dr. wants to keep him on that with because of the good its doing for the main tumor and lymph nodes within the chest cavity. time will tell how long insurance will pay for it 🙁

Take him back to see radiologist this Monday at 2:30 p.m. and then for another biopsy for end of clinical and for Precision Genomics to help find other studies and a plan for further treatment. All else fails I guess it will be surgery

The radiation an be one mega doe or a series and can be 1-14+ days which will mean daily trips to Indy (200 miles round trip) if can hack it they are looking into helping finding lodging where I can take the dog and cat in a cage with us there is one they says is pay what you can afford. If all else fails I guess I will have to board them- pay for motel room/ eats and gas and lock up the house for the duration -

The next Pemnrolizumab (Keruda) is scheduled for the 29th of April but has to be a spacing between the last radiation treatment and it ...

Not sure if I am making any sense of not but it was a lot to adsorb today - but they do talk, explain, listen and go the extra mile.

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Replies to "Back from Indy... course of treatment in progress of changing... The main tumor in lung and..."

@rebur1951 Wow, that is a lot to take in! I'll bet for you all of this is stressful and I will remind you with rue gentleness to make sure you take care of yourself as well. You need to be on top of the game and he needs you at your best. Am glad that the main tumor is stable and not growing. As for the others, I hope they stay the same size, or actually shrink in size. You are making sense and that is a tremendous amount of information to process. Take it as easy and you can and I"m glad you have a supportive team of doctors helping you both out in this tough journey.

@reibur1951- Kind of a mixed blessing- some good, not so. I'm with @alamogal635 please take care of yourself. You are going above and beyond your scope of care. Hope, if I need a caretaker one day that it will be someone like you! Are you getting enough rest? Eating well? All functions are a go? lol