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Living with lung cancer - Introduce yourself & come say hi
Lung Cancer | Last Active: Sep 25 12:58pm | Replies (1044)Comment receiving replies
Update - Hopefully winter is behind us but Easter is not passed as yet here in Indiana it can snow up a storm on that day.... - to be 56-70's today.
I am head to Indy with friend in about 2 hours - he had ct-scan on Thursday at Indy and this is to be his dr/chemo/immunology - not sure what is going to be going down - got e-mail of tentative results and it said the Game plan has again changed after only 6 weeks -
On Feb. 25 they add chemo back - Docetaxel but it must not be working as they had hoped..
He has had no bad side effects from it other than sleeping a a lot, some hair loss and his taste for foods are off; have noticed a lot of irritability he yells more at the dog barking and yells at him to "shut up"
He's had a muffled cough almost constantly too. BUT he still rides his bike down to the country store 10+ miles one way - has missed a day or two - generally the days of the dr/chemo/infusion when we roll into home aft 7-8 p.m.; last Thursday - when we got home from ct he oped not to go as was indy and on chilly side and said he did not feel like it.
Not sure what's goign on but will know something sometime after 12 noon our time But what ever will have to manage and carry on.
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Back from Indy... course of treatment in progress of changing...
The main tumor in lung and the rest of the lymph nodes one in the left arm pit and chest are are all stable and not growing… as of yet - the Dr. is satisfied with what the Pemnrolizumab (Keruda) is accomplishing there
The question is why has it not phased the Supraclavicular lymph node - it had been shrinking but done a complete about face.
BUT the Supraclavicular lymph node is still acting up it is near the jugular vein too & increasing in size along with some near it So once again in less than 2 months (6 weeks) kicks him out of the clinical study
he did not receive the Chemo (Docetaxel) today because of the continued growth of the Supraclavicular lymph node
Dr. is keeping him on the Pemnrolizumab (Keruda) but the clinical study will not pick up the cost of the drug had to get
pre-approved through his insurance for that Dr. wants to keep him on that with because of the good its doing for the main tumor and lymph nodes within the chest cavity. time will tell how long insurance will pay for it 🙁
Take him back to see radiologist this Monday at 2:30 p.m. and then for another biopsy for end of clinical and for Precision Genomics to help find other studies and a plan for further treatment. All else fails I guess it will be surgery
The radiation an be one mega doe or a series and can be 1-14+ days which will mean daily trips to Indy (200 miles round trip) if can hack it they are looking into helping finding lodging where I can take the dog and cat in a cage with us there is one they says is pay what you can afford. If all else fails I guess I will have to board them- pay for motel room/ eats and gas and lock up the house for the duration -
The next Pemnrolizumab (Keruda) is scheduled for the 29th of April but has to be a spacing between the last radiation treatment and it ...
Not sure if I am making any sense of not but it was a lot to adsorb today - but they do talk, explain, listen and go the extra mile.