← Return to Living with lung cancer - Introduce yourself & come say hi

Discussion
Comment receiving replies
@alamogal635

@flusshund Thank you fro that encouraging information. That is the most information I've heard about the aneroid tumor lets. I am glad they got it along with the other one when both were so small. That is good advice from your psychiatrist friend from whom you got support. It is often easier said than done! I will be working on it however. I think it is wise to be open about our cancer--don't mean buttonhole people and regale them with our stories, but not shy away from talking about our cancer if it is appropriate. I am learning also to do this. At first I felt like it was a dirty secret--like in the Biblical days of being a leper. Thank you for your payers. I will be praying for you as well. Have taken this day off to rest and just be. It feels good. Remember a disc jokey who always opened his show with "Let us thank the Lord fro he has given us another day." That was years ago, but it is still a good way to approach each day.

Jump to this post


Replies to "@flusshund Thank you fro that encouraging information. That is the most information I've heard about the..."

@alamogal635, I found information about carcinoid tumorlets as @flusshund did. Pulmonary carcinoid tumorlets (benign) are not the same as neuroendocrine tumors of the lung (cancerous).

I think this is the 2017 NIH paper that Flusshund referred to https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5389108/

This paper (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5389108/) states: "Carcinoid tumorlets (PCTs) are rare, benign and usually constitute incidental findings. ... They often coexist with diffuse bronchiectasis, emphysema and interstitial fibrosis."

When you meet with your doctor, you might wish to ask more about your specific situation. Here a few things I would want to know:
- What is the difference between a carcinoid tumorlet and a pulmonary adenocarcinoma lesion or tumor?
- Do I have any other underlying lung conditions?
- What else do I need to know?

I'd be very interested in hearing what you learn.