← Return to Brinsupri follow-up

Discussion
scoop avatar

Brinsupri follow-up

MAC & Bronchiectasis | Last Active: 58 minutes ago | Replies (131)

Comment receiving replies
Profile picture for scoop @scoop

@dstella Two things, immediate and longer term.
1) The first priority is to get you feeling better. Contact your current pulmonary doctor through the portal and describe your symptoms. As a reminder symptoms of an exaggeration include: increased cough and sputum, SoB, chest tightness, fatigue, low grade fever, feeling unwell, malaise. Likely, you'll need to drop off a sputum sample so make sure you request that.

2) Longer term (after you are feeling better) Call the office again to request changing docs. If the office refuses to let you change doctors, after one more try, it's time to get the patient ombudsmen involved. You, the patient, are the reason doctors and their team have jobs. Speak with the supervisor or get a call back from supervisor. Be sickly sweet! Ask to schedule or move your care to Dr. Christoper Richards, who is listed on the NTM Bronchiectasis Centers as a bronchiectasis expert. If you are denied it's time to pursue the patient ombudsmen route. You'll need to google how to go about that.

Hope this helpful and you feel better soon.

Jump to this post


Replies to "@dstella Two things, immediate and longer term. 1) The first priority is to get you feeling..."

@scoop Will do!
Thank you so much for your support.
Deidre