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DiscussionAnyone have swelling with liver metastases?
Neuroendocrine Tumors (NETs) | Last Active: 3 days ago | Replies (25)Comment receiving replies
Replies to "@pavlina60 hope you are doing well.my sister diagnosis same PNET grade 3 .can you help what..."
@sonalisaha09 . I am having Somatuline/Lanreotide injections every 4 weeks. This is to slow down the tumor cells growth. I also take Creon (pancreatic enzymes) with every meal and snack, since most of my pancreas has been resected, and I also do not have spleen, gallbladder and part of my stomach. During distal pancreatectomy I had " debulking surgery" of the liver.
Doing well, love to travel, have some carcinoid symptoms (flushing and night sweats), but I am still around :).
God be with you and your sister, we are tough bunch Zebras.💜🦓