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Recent Stage 4 Colon Cancer diagnosis

Colorectal Cancer | Last Active: Dec 17, 2025 | Replies (43)

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Profile picture for florip @florip

I was diagnosed with stage IV colon cancer in March 2024. I had CRS+HIPEC surgery followed up by a leak where they put together the small intestine and colon which triggered a 5 hour surgery to clean up my inside and left me with an ileostomy. I lost 25 lbs out of my 105, and was unable to get out of the bed on my own for several months. But the body and mind work together and after a couple of months, with PT and OT, I was back on my feet. A year later, I do a lot of things I want, I am able to walk 3-4 miles a day, I do stretches, I eat fairly well. After 6 months off chemo, we found 2 tumors in my liver which were removed with ablation. I am now again at the stage where there is no sign of disease but cautious. I have changed what I eat and how I think about this disease. My oncologists (I work with a few) stated that cancer is a lifelong disease that can be managed much as others. I have done 2 rounds of chemo, both 11 or 12 sessions. I went from FOLFOX last year to FOLFIRI this year. What I am trying to say is you are young and went into this healthy (outside the cancer of course). Believe your body can fix this issue, work with a naturopath to help strengthen your immune system and to help have energy (for me it was lifesaving, my side effects from chemo were so reduced vs last year when I did not work with a naturopath). Read if you can and want Life over Cancer by Dr Block and Radical Remission by Kelly Turner, they are mind opening at the possibility to conquer the disease and live a healthy life. My kids (they were 15 at the time of my diagnosis) helped me a lot, they needed me but also helped me with moving around, they picked up chores and cooking and cleaning. Get your kids no matter how old feel they help you, they are scared but it helps them knowing YOU need them. Stand strong and positive, it can be done! My best to you. Flori

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Replies to "I was diagnosed with stage IV colon cancer in March 2024. I had CRS+HIPEC surgery followed..."

@florip Congratulations! You’ve been through a LOT and sound like you’ve reached a good headspace.

I relate so much to your experience. I started off with debulking surgery for my stage 4 appendix cancer (filleted like a fish!) then 6 months of fortnightly Folfiri and Avastin with the 46 hour take home pump after infusions then HIPEC with CRS (an even bigger wound!).

I’ve been NED since mid 2022. I was so lucky everything went well and I didn’t need a bag.

I haven’t had a recurrence - yet - but my team has prepared me as well as they can to accept my type of cancer will come back and there’s no guarantee we can get on top of it again. So important to treasure every day.

With my oncologists encouragement I’ve done my best from diagnosis through to now to exercise within my limits (I can now hike but can’t run starting from walks down the street and back to round the block etc. The course became longer and reopened my horizons!! I’m almost as good as new - except for my mind. I don’t look back to “before” but the future is a different thing. It is very hard focussing on the here and now and not letting fear and stress creep in. A continuing work in progress to find tools to shut down the negative thoughts when they creep in!

I like you have also made sure to eat very healthily to fill my body naturally with nutrients and to give my immune system the very best chance to fight off disease.

I don’t use alternative medicine but I do use adjuvant holistic therapies including diet, exercise, mindfulness etc. I’m in a sweet spot at the moment other than wrestling 6 monthly Scanxiety!!

@florip
Great positive attitude: Appreciating all the goodness around you and in your life can boast your positive energy levels and a a healthy outlook toward life, can only charge your mind to be more grateful and do your part in healing yourself. Joseph