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Living with lung cancer - Introduce yourself & come say hi
Lung Cancer | Last Active: Sep 25 12:58pm | Replies (1044)Comment receiving replies
@flusshund- Good afternoon and welcome to Mayo Connect. I am a lung cancer volunteer mentor here at Connect. I have had lung cancer on and off for 22 years. I have what is called multifocal adenocarcinoma of the lung. What cell type of cancer do you have? I sympathize with your fatigue. I have had chemo and it's hard to describe to anyone what it feels like. Did your doctor not say anything about your low stamina prior to your lung cancer journey? You are recovering from a lot of chemicals and surgery and radiation. It can take upwards of a year, maybe even a bit more, to feel like yourself again. Rest and sleep when you need it. It sounds as if you have a lot of plans, that's just terrific.
A lot of non-smokers get different types of lung cancers.
Here is my blog, about my lung journey if you care to read it. https://my20yearscancer.com/
How is your breathing? Have you been assigned a pulmonologist?
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Greetings, Merry. Should have mentioned the type. Lung Adenocarcinoma, Stage IIB. PD-L1 strong expression. But . . . Exon 19 EGFR mutated. My doctor did talk about fatigue during treatment, but didn't mention the lingering effects. Or maybe they thought that was implied.
A Pulmonologist was part of the team when I first had my pulmonary embolisms. When my more recent blood level spike and PET scan indicated a biopsy, I made an appointment with my Pulmonologist. He said he'd get back to me in 2 weeks after he had consulted with my surgeon and Oncologist. 3 days later he called and said "Get it done.", so I did. My hospital has a Tumor Board that meets every Friday at lunch and discusses gray area cases like mine originally was. My Oncologist, Pulmonologist and Surgeon are all on that board. My Oncologist is actually the head of that board as well as the Head of Oncology at that hospital. Lung cancer is his specialty.