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Post sepsis syndrome….what helps?

Intensive Care (ICU) | Last Active: Oct 25 2:58am | Replies (4)

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Profile picture for sreuler @sreuler

Jenny, I wish I could do more than commisserate with the plight of you and your husband. Shame on doctors who aren't helping you navigate the pain issues by referring your husband to specialists. I've had highly rated doctors tell me a condition must be imaginary because they can't explain it. Takes a lot of resiliance to trust the body's wisdom and keep seeking medical help until you find a professional who puts the puzzle pieces together . . . correctly. And it can be a challenge to find a physical therapist who is a supportive match for a person's particular conditions. One size does not fit all. If you haven't already been in touch with the Sepsis Alliance https://www.sepsis.org/, you might try their resources and online support groups. In addition to posting in the ICU support group, you may want to post in support groups that focus on pain. Again, I wish I had more to offer. Sending pain-free well wishes to you and your husband. Sharon in Dallas.

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@sreuler
Thank you so much! His PT finally did research on PSS and decided to take a less aggressive approach. He had acupuncture yesterday so will see if he starts feeling improvement. Agree, medical doctors don’t seem to have any training on this. Even his internal med doctor! I had hoped Mayo Clinic would have more insight, but I think it is just not a one solution issue!
I appreciate your kind words.