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Axonal peripheral neuropathy: Finally, a diagnosis!
Neuropathy | Last Active: 1 day ago | Replies (158)Comment receiving replies
Ed:
Like you, I was diagnosed in December 2023 at Mayo Clinic in Rochester after DOZENS of tests with "axonal, sensorimotor, large fiber predominant peripheral neuropathy, uncertain etiology." I was also told that there is really nothing that can be done for me. I am 69 years old and feel as though my quality of life has declined quite a bit. I can still walk and ride a bike but hiking now is difficult. I exercise every day - stretching, core exercises, weights, and riding either a stationary or outdoor bike. Fortunately I'm not in pain but my feet are always numb and my ankles and lower legs are very weak. I'm a fall risk. I too have drop foot and severe problems with balance. Five years ago I was running a half marathon every other week!!!! Those days are history. I just find it hard to believe that the MC couldn't help me. I feel my legs - my feet - my life slowly slipping away from me every day.
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@mdrummy56 It was not easy to get into Mayo and like you, I was told there is nothing that can be done. I was disappointed; however, I was glad that what I have is not something worse. You are able to do many things like walking, riding a bike, doing core exercises. Our symptoms are very similar however, the cause may not be the same which I feel makes PN extremely confusing and difficult. I'm in my mid 70's and was active until my mid 60's. I often remind myself to look at what I can do, not what I can't do. Yes, balance is a problem, and I now use a cane more often than not. We must make adjustments in life and figure out how to do what we want but in a different way. Think about all the things you can do and keep doing those things that can also slow down progression of PN. The best to you and keep moving. Ed