Tulsa Pro Experience, Mayo Clinic MN – July 2024

Posted by jcf58 @jcf58, Jul 19, 2024

Gleason 7 (4+3). I was treated Wednesday July 17, 2024. I checked in at 7am, entered the MRI/Tulsa suite at 8:15, and woke up in the recovery room around 11:30am. Approximately 30% of my prostate was ablated. I woke up with no pain and catheter in. The first 5-6 hours of the catheter were a little tough as I felt an urgent need to pee, but you can’t because you have the catheter in. Was fine after that. I did take Oxybutynin for bladder spasms at night. At 12:30pm, I walked out of the hospital and 2 blocks to my car to be driven home to Minneapolis.
Over the course of the next 40 hours, I just needed to regularly empty the catheter bag and continued to have no pain. Didn’t even take a Tylenol. The morning after TULSA I took my normal 2 mile walk. Catheter was removed at 7:45 Friday morning and I was good to go home. Catheter removal was not bad and they had to ensure I could pee on my own before release. Urine stream is about half of normal but will improve as inflammation of urethra declines. No medication needed at this point.
I did a ton of research before deciding on TULSA Pro. I talked to 7 different doctors. 4 current and 3 retired (1 had RP and another had radiation). The technology and low risk of side effects made this an easy choice for me. I was also fortunate to have the cancer contained in a fairly small lesion.
I couldn’t be more pleased with the procedure and my care at Mayo.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Profile picture for etafkj12345 @etafkj12345

One other question regarding TULSA. If cancer does return what do we do? Also is monitoring possible?

More focal?
Whole gland treatment?
(Essentially like a Rad. pros. ?)
Radiation?
Da Vinci Rad Prosectomy? (Sounds iffy)

Appreciate your input.

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My Mayo Doctor told me all options are on the table if it returns. Really depends on how and where it comes back.

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Here is my 6-month post-TULSA MRI W/WO contrast. I deleted the non-prostate findings. PSA at 3 months post-TULSA was 0.10. Looks like TULSA was a success for me.

I did the total gland ablation as there was no sense in a focal ablation that would have almost been a guarantee to return at some time in the future for further treatments. I wanted this taken care of now, and to be done with it.

Healing has taken longer than I hoped. Only now has my stream really improved to what I would consider normal. My Testosterone is low-normal, so I have no sex drive and very mild ED. All in all, at 69 years of age, I think I don't even care about that at all.

FINDINGS:

Localizer/T2 coronal: No acute abnormality.

Prostate: Post ablation changes of the peripheral zone of gland. Residual
transition zone is measuring 3.0 x 2.8 x 2.6 cm = 11.4 ml. No findings of
high-grade tumor.

IMPRESSION:
1. Post ablation changes of peripheral zone of prostate gland. No
recurrent disease or findings of new high-grade tumor. No pelvic
lymphadenopathy.

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Profile picture for etafkj12345 @etafkj12345

I am 66 and considering the TULSA as well. I am a little concerned as some of the report of unreliable post treatment monitoring ie. is PSA still accurate after treatment. Also, how do you know the biopsy done is not missing cancerous tissue? I have on spot Gleason 6 and one spot Gleason 3+4=7. I am a good candidate by recommendation of Dr. Woodrum's Team.

Worried about post treatment assessment and return for possible other cancer. Curious about percentage of people who have recurring cancer but like minimal side effects.

I know this is a newer therapy.

Appreciate any feedback.

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I had TULSA done at 68 years of age. Total gland ablation was performed for a 3+3 Gleason, with nine out of 30 cores positive for cancer. At 3 months post-TULSA, my PSA was 0.10, and my MRI results at 6 months ( see above ) show no cancer. My PSMA before TULSA showed no uptake, not even in the prostate, though the biopsy indicated cancer. I had two tumors and some mild BPH. It looks like TULSA resolved all of those issues.

Post-TULSA experience was zero pain, seriously, zero pain from the treatment. I had two medications for bladder spasm and the feeling that I sometimes needed to pee. I rarely took those for the 12 days I had a catheter.

You can have your prostate removed, and still have a chance of cancer returning. I looked for a procedure that was minimally invasive, low pain, quick recovery, did not limit any future treatment that hopefully I would not need, and did not require me to have the prostate removed. TULSA was the answer for me. At 6 months, I appear to be cancer-free. I will see what my URO wants to do, maybe another MRI at 1 year post-TULSA. I'm not sure what he will want to do, but right now I am delighted and grateful.

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What did it cost and does Medicare now cover

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Mine was covered under Medicare in 2024 (had to be done in a hospital— I did Mayo Rochester).

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