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Living with lung cancer - Introduce yourself & come say hi
Lung Cancer | Last Active: Sep 25 12:58pm | Replies (1044)Comment receiving replies
Thank you, Merry. You are a world of knowledge and support. I actually joined a Chemo Support group on FB and everyone shares knowledge and experience. I did get a wig a couple of weeks ago and ordered a couple of the Chemo caps, which look horrible on me! Guess I can wear them around the house. I need more poof. Have read it is better to buzz your head rather then shave it. Yes, this is very hard as I am one that curls and styles my hair every day. Now, I haven't washed it for a week. I guess, since I have not been given many options for treatment, this almost seems futile but I do not want to die any time soon. I would talk to Wakekee before I make any decisions. Was thinking of maybe going to Scripps but, again, would be difficult and I hate to be far from home. Will see what he says this morning.
Replies to "Thank you, Merry. You are a world of knowledge and support. I actually joined a Chemo..."
@margot- I thought that all chemo caused hair loss so my friend came to my house to give me a buzz cut. But just before she plugged in the "buzzer" she asked me if I was sure that I would lose my hair. She had me call the infusion nurse and I learned that the chemo that I would get would not necessarily cause hair loss. Margot- I was seconds away from losing my very long, thick hair! I only experienced hair thinning, not that anyone would have noticed because of all my hair.
Before each chemo session I put make-up on and dressed nicely, even if I had jeans on! It was a small thing, I know, but it made me feel human for a bit!
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Saw my dictir this morning. My Neutrophols are only .8! He us skipping Chemo this week, will recheck blood work on Tuesday, Chemo next week for 3 days the 5 days of Granix injections. Going to try and schedule me to get a port put in (shudder) then a PET scan. I was going to ask him how he thought I was doing but guess he can't answer that until after the scan. Asked him about the pains I am getting and he didn't know why. Had pain in my cgest and by my left arm pit this morning. Hard to believe he has done this fir so many years and has no answers. To,d him I found a couple of posts where people with this LCNELC are also getting Keytruda or Opvido but he says that is immunotherapy and he and Wakelee are wary of trying that on me because, this undiagnosed, they are sure I have some immune probkems going on since before this cancer diagnosis. Guess it is a wait and see. Wish he were more talkative.