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So, now just still waiting, losing my mind being worried and new quest

Neuroendocrine Tumors (NETs) | Last Active: Oct 7 8:40pm | Replies (25)
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Profile picture for ricki8 @ricki8

Hi dbamos1945

I watched Dr. Grewal on Sep. 18 with his talk on Alpha PRRT and trying to
copy the page to send to you. It's through the Neuroendocrine Cancer
Foundation and if this doesn't work, I'll try and find another way to send
it to you.
https://www.ncf.net/
I did mention my experience with Histotripsy and do like it, however it's
limited and extremely expensive ($250,000.) CAD.

Let me know if there is anything else I can suggest,
Ricki

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Replies to "Hi dbamos1945 I watched Dr. Grewal on Sep. 18 with his talk on Alpha PRRT and..."
dbamos1945 | @dbamos1945 | Oct 6 10:57pm

@ricki8: Thank you for your reply. I listened to the podcast again and found it reassuring that there are positive steps being taken with Alpha PRRT trials. Can you tell me any differences you noticed between your Lutathera Beta PRRT treatment and the Alpha PRRT clinical trial as a patient treatment?
Why was Hipotripsy chosen for your Nets progression? What area of the body and size of tumors were treated? If in the liver, was it close to the portal vein?
Hope my curiosity is not annoying! Thanks, dbamos1945

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