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oma1 avatar

Ileal conduit pros/cons and quality of life

Bladder Conditions | Last Active: Oct 5 7:24pm | Replies (2)

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Hi, @oma1. I'm so sorry to hear that you're having problems with your catheter. Changing your dressings and clothes several times a day must be frustrating -- and tiring!

I wanted to point you toward a discussion happening in the Bladder Cancer support group that you might find helpful: Neobladder or Ileal Conduit, unsure -- https://connect.mayoclinic.org/discussion/neobladder-or-ileal-conduit-unsure/
There are a few members in the discussion who are offering their experiences with an ileal conduit.

Has your doctor recommended a timeline for moving forward with surgery?

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Replies to "Hi, @oma1. I'm so sorry to hear that you're having problems with your catheter. Changing your..."

@klp Oh thank you for pointing me to the group that may have helpful answers for me. I don’t have cancer, but a neurogenic bladder from the MS. It’s so bad that it is going to require a urinary diversion procedure. I just want to learn more about these options. Thanks so much. I am new on this support site, so do I need to tell my issue again to this new group?