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The big thing is that I can deep breathe without coughing. I’m able to play ping pong at a senior center without running out to cough up a lot of sputum or constantly have a cough drop at my beck and call. I’m able to eat in public, because eating could be a trigger for mucus problems.(coughing up sputum). Definitely less fatigue, can play with grandkids. ( even tho they are much more careful this year to stay away if they are sick). I ‘m pretty sure the decreased mucus is a “real” thing. Still have to do airway clearance and 7% nacl nebs 2x daily . but get up much less sputum and very light compared to the last year. still keeping my fingers crossed as it’s only been 37 days.
( i wrote this on another thread , in response to to a question… how are you feeling better?)
Replies to "The big thing is that I can deep breathe without coughing. I’m able to play ping..."
@crepass
I am soo happy for you!! Keep going! 🙂
@crepass are you on the 10mg or 25mg?
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@crepass That is so encouraging for me to hear what you said above, "I’m able to play ping pong at a senior center without running out to cough up a lot of sputum ".......... I’m able to eat in public, because eating could be a trigger for mucus problems.(coughing up sputum). "
Crepass....You just described my problem that is so frustrating and is keeping me from eating with others or being out in public fully in a social way.
What a game changer for you......and hope it will be for me.
I am going to see the pulmonologist(s) the end of this month and although I have never been on any medications for a chronic health problem in the past and have turned down the antibiotics for BE, although I have a low load of MAI, due to my feeling well and not having had an exacerbation. I'm am very close to mentally being ready to try the Brinsupri.
Thanks for sharing your experience with it so far.
Barbara