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Living with lung cancer - Introduce yourself & come say hi
Lung Cancer | Last Active: Jan 22 8:18am | Replies (1013)Comment receiving replies
The main tumor in lung and the rest of the lymph nodes one in the left arm pit and chest are are all stable and not growing... just that with the Supraclavicular lymph node acting up for now kicks him out of the original clinical study - he was done to the he went through the 1st 12 weeks week 1 was carboplatin, nab-Paclitaxel/abraxane (both chemos) & Pemrolizumab (immunology) and weeks 2 & 3 nab-Paclitaxel/abraxane (chemo) only with flying colors so to speak no adverse reactions to the drugs, very little hair loss (in fact grew back thicker), and only a little neuropathy in his feet reaching only to about the base of ankles in other words one who others would be very envious of or would like to "punch his lights out" did not have to take any of the 3 bottles of extra medication for nausea & vomiting prescribed; no diarrhea, loss of appetite etc. At least he gets to be in what the call Phase II
Yes we had much the same type weather... I had a nice warm water bed and that where I stayed most of the time in front f the bedroom tv, laptop and smartphone by my side... was diagnosed in Oct 2017 in fact we know before he was out of the biopsy of the lung that he had cancer there was PET scan etc and by Dec 15th he started his treatment... think we were in Indy every week or every other week in between Oct-Dec before we started the 12 week trips till nid April - only missing 3 sessions (delays) one we landed in the ditch on Jan 12th it was a rain/sleet weather with probably 2-3" or more on the highways before the snowplows was out - after getting out we headed home - the other 2 was because his immune count was down and they would not do the treatments (the "Do no harm") ... besides that we have made it through the death of his father on June 29th 2018 (he was not making enough red blood cells & having transfusions every 2 weeks) & his mother who died Dec 28th - of Acute Myocardial Infraction, near 100% blockage, sepsis, c-diff, Stage 3 Acute Onset Kidney disease beside her full right side stroke which she had been in nursing home since Dec 3, 2004 I sat with her and watched her die slowly from Dec 19-26 24/7 all but for about 3 hours she was comfort care only as was DNR no advance life sustaining support and if the did surgery to alivate blockage she would of possible not made it or done more damage than good
Just have to hope for the best and he does as well as he did on the first round but with only one chemo he should and it is to be similar to the nab-Paclitaxel/abraxane
How are you coming along @olgamarie ?
Replies to "The main tumor in lung and the rest of the lymph nodes one in the left..."
Friend has started his 2nd clinical study and had his first treatment of Chemo (Docetaxel) combined with the Pemnrolizumab (Keruda) (which he has been on since Dec. 2017 every three weeks) plus a dose of steroid to ward off and of the side effects
The 1st clinical study was: Pemnrolizumab (Keruda))/Carboplatin/Abraxane week1 and then Abraxane week 2 &3 for total of 12 weeks Dec-Apr and then in April was only the Pemnrolizumab (Keruda) every 3 weeks - like said he had little no side effects - - thus far he has no side effects to the new chemo hoping he will do same as he did on the 12 week regimen not sure how long this will continue - will be depending upon if any side effects the drug as is a little more wicked than the other 2 and will be taken off if it causes other complications.
The Supraclavicular lymph node shows measures partially necrotic ( death of cells) 4.6 by 6.1 cm; there are 3 others 1 morphologically 1.1 cm.; 1 partially necrotic ( death of cells) at 1.6 cm. and the other necrotic at 1.1 cm He had his biopsy of the Supraclavicular lymph node for the clincial study its basiccally for their study purposes unless it turns something more up that what is now known
on Thursday 21st and goes back for treatment on March 18th and scans on April 4th and treatment again on April 8th.
Options if this does not work or show progress is first radiation, and then possibly surgery if the radiation does not work.
The main tumor/mass and all the chest lymph nodes and the Left Axillary lymph nodes have shrank not changed and have remained stable. the upper lung mass has been described as "fungating" in the CT scans
He is Stage IVB NSCLC into his second year being diagnosed in Oct 2017
Its been a very rough 2 years on all of us his father died Jun 28 2018 after a near 2+ year battle onf not making read blood cells, & his mother on Dec. 26th 2018 after being in nursing home for 14 years from full right side stroke - he has a massive Acute MI near 100% blockage with many other health issues was "comfort care" for 8 days before dying I stayed with her 24/7 tho he never has said I know their deaths has taken a toll on him.
There has been never given a time frame of survival given only what I have researched.... he is determine and rides his bicycle almost every day 10+ miles one way to a country store to have coffee be with local people.
He has not had any colds, flu etc. which is a plus... God is good and he will take care and provide what is needed...
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Wow. You are amazing!! What a book of lessons you have. Everyone says “keep fighting “. I think we all just say “keep living”. Good luck!