@astaingegerdm yes we are sticking to a pretty pureed diet - smoothies, yogurt drinks, yogurt, applesauce, cream of wheat, cocoa wheats, pudding. We've tried some Ritz crackers with peanut butter, and he does okay with those but they about disintegrate with any liquid :).
He's done well but he's been eating this way for 2.5 weeks so he's dying for a sandwich, granola bar, or fruit all of which he loves.
Yes, I think that's a large part of my frustration - I said 10 weeks ago "something is wrong, this is not constipation." and I was dismissed. I commented at the specialist and even in pre op for EGD and said "oh that's so rare" when I talked about some type of obstruction or pyloric stenosis or pseudo-obstruction - would this have happened sooner if I would've been listened to? I'm a parent and an ER nurse. I worked in PICU prior to the ED but felt very ignored in my concern.
@rnmom26
I worked in Peds and learned early on to listen to parents. Not all physicians do- even when we as adults go to the doctor and explain what’s bothering us.
You are on the right track now. Please give us updates!