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Dawn: I have membranous glomerulopathy. I was diagnosed in 2017, and the consensus is that it was triggered by prescription medication that I was taking for my osteoarthritis. The medication was an NSAID, so I cannot take any NSAIDs ever again. And, as a result of not taking those meds, I have not had a flare of MG in years.
I found out I had GM following a CT for another reason. The CT showed multiple pulmonary emboli, and a large clot in my vena cava. The nephro called me from the hospital right after the radiologist paged her about my CT, and she sent an ambulance. I spent several days in ICU as a result. I was very lucky. The big clot didn't move, and the PEs eventually resolved. I have been under the care of a nephrologist ever since that first episode, and he watches my creatinine and BUN very closely. Right now I have rising values, and am in the middle of a lot of tests. So far, no indication of GM, but it worries me. That's really all I can say. I rarely meet anyone who has had this disease, or even heard about this disease, so I would appreciate any information you can send my way, and I will do the same for you.
Replies to "Dawn: I have membranous glomerulopathy. I was diagnosed in 2017, and the consensus is that it..."
I found the "private" message option . . . . DUH, I should have seen it before; so, if you'd feel more comfortable sending me a private message, feel free. I have yet, though, to find a way to "send" one. Maybe I just haven't been a member long enough yet or something.
Anyhow . . . feel free to send me one if you have the option. I'm all ears.
Apparently, I can't send private messages yet. Understandable protocols. I get why they're careful. So, since our situation is a bit unique, I tried to explain it to you yesterday in a really long, wordy response. "They" wouldn't let it through.
I hope to be able to send you more info soon through a private message but I guess I'll have to wait. How long that takes, I'm not sure.
Plus, I don't seem to be able to edit my past comments like I could before. I think that's odd too. I detest it when I discover my typos, as well. Hopefully, things will resolve soon.
In the meantime, just let me know what info, specifically, you would like me to send.
Take care, hun!
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Welllll, I tried. But I guess the powers that be didn't like or wasn't able to accommodate my lengthy, verbose response because I just got the circle of unending doom after I tried to send it through.
There's just so much to this nightmare of a story and the journey we've traveled (and, apparently, are supposed to continue for a while yet) . . .
Specifically . . . though . . . were you needing / wanting to know about certain blood/urinalysis results?
I'll try and post something tomorrow, perhaps a shorter version of what I tried to send; but, it's just so complicated and so stupid. I'm amazed we're still married and can talk in complete sentences after all of it.
Til tomorrow . . . but if you need more info on blood tests, etc., just let me know and I could look them up for you.
Best wishes,
Dawn