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Thanks or sharing your experience, but I am sorry to hear about the many unpleasnt side effects of the additional tereatments.
I recently had prostate suregery and the risk profile from the final pathology report and a decipher score of .75 I received last week, surgest a high likelihood of cancer recurrece at some point in the future.
Given the quality of life issues you described, I am wondering if the additional treatments are worse than the disease?
I want to live long, but NOT at the expense of my quality of life. That really worries me a lot. The only potential silver lining might be better treatments with less toxicity and side effects may be available relatively soon.
I wonder what you and experienced folks like @jeffmarc think about my worries and hopes? What bad are the side effects of salvation radiation and hormone treatments? Are there better treatmens on the horizon are we stuck with the same treatmens whose side effecgts might be worse than the disease?
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@soli
It’s true. I’ve been on ADT for almost 9 years, But people I know have absolutely no idea unless I tell them. Even with PC for 15 years, I’m very active. I run on the track a mile twice a day and it probably keeps me energized. I go to the gym three times a week just to build up my muscles which at one point I couldn’t even get off the floor, and now I can. My wife and I go swing dancing almost every weekend, Did it last night. I never get tired doing that.
I am now getting very few hot flashes, I used to get a lot. Many days I get zero or one, And they’re very mild.
I had a prostatectomy 15 years ago. 3 1/2 years later, my PSA started rising, and I Had salvage radiation. 2 1/2 years later, it came back and I went on ADT.
I am on Orgovyx and Nubeqa And it really makes it easy, No side effects from that Nubeqa, It’s even allowed me to reduce the amount of blood pressure medicine I need because of Zytiga.
I do watch what I eat very few carbs and sweets no deli meats or red meat, But even with those rules, you can have steak once a month and not worry about it.
I’ve had four reoccurrences and I’ve been Castrate resistant for six years, Going on almost 2 years undetectable. I do have BRCA2 so someday it’s going to come back.
I’ve had this so long I really don’t worry about it. It’s not something I think about.. With the proper treatment, you can live until you die of something else. I’m almost 78 And I don’t look or feel that old. I know there are drugs and treatments. I can take one when what I have now fails.
PC can be scary, but you just have to live your life.