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I have had bronchiectasis and MAC for 10 years. I failed 2 attempts of treatment due to side effects. I’m not feeling well and when I messaged my pulmo at MGH in Boston he stated I wasn’t a candidate? I’m bewildered, I have no co-morbidities.
He stated I would have to wait for my next appointment if I had any questions.
Any insights would be appreciated greatly!!
Thank you!
Deidre
Replies to "I have had bronchiectasis and MAC for 10 years. I failed 2 attempts of treatment due..."
@dstella From what I see, the guidelines are that it for noncystic fibrosis patients who have had two exacerbations requiring antibiotics in past year. Is that your situation?
I would not qualify now because I haven't needed antibiotics in a year. I think I would have the previous year.
Do you have a standing order to send a sputum culture if you’re having increased sputum or fevers?
I agree with Scoop about contacting your doc's office since you're feeling sicker. I also agree that a doc well versed in bronchiectasis makes a big difference.
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@dstella Are you seeing a bronchiectasis specialist at MGH? If so, ask for a virtual appointment or a call back from a nurse or NP from the practice. If not, get an appointment with the bronchiectasis specialists there. I see they are on the list of centers: https://www.bronchiectasisandntminitiative.org/Find-Care/Care-Center-Network/Find-a-Center