@hopeful33250 Thanks for reaching out. To clarify, while I am "medically lonely" in terms of finding others who've gone through this, and would be pleased to learn and share from others in the group, thank God I surrounded by family and friends and not otherwise lonely. I had NO SYMPTOMS WHATSOEVER, and found the non-functioning tumor incidentally this summer during a CT Scan in connection with a relatively minor medical issue. Initial scans reported a "suspect ACC" 14cm in size, and scans a few days later found one 18cm in size. Being that ACC is so rare, I made an effort to find experts in the area, and discovered the incredible team at the Mayo Clinic. Thank God they successfully resected it - discovering it to be 24cm(!) large, Stage II. The team is caring, skilled, and experts in their field. Being that in addition to ACC's being rare, tumors this size (in living people) are even more rare, to avoid taking chances I expect to start Mitotane soon and am being treated by a specialist - an oncologist who focusses on Neuroendocrine tumors generally and ACC's specifically. Have any of you experienced side effects? How quickly did they start and did you find successful ways to mitigate them?