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DiscussionWill soon have a Bone Marrow Transplant: What can I expect?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 10 hours ago | Replies (31)Comment receiving replies
Replies to "@loribmt thank you so much. I am close to Jacksonville, as I live in Tallahassee so..."
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@sissyhand, having a consultation with a BMT specialist doesn’t commit you to the precedure. It would be good for you to learn more about the option to see if it’s necessary at this time. If you’re having a positive response to your treatment, with a lower potential for recurrence, then maybe talk this over with your oncologist about deferring the BMT.
I mentioned earlier, that talking with a BMT social worker can be very helpful to work through some of the practical challenges that come along with a bone marrow transplant. There is a lengthy recovery time of 6-12 months and the need for a dedicated caregiver. One of our members @katgob was in a similar situation where she didn’t have any one person who could fill the role of caregiver. But she was able to make arrangements to recover at a friend’s home and then return to her own home. Often, the logistics, with some faniggling, can be worked through.
There’s also some great information through National Bone Marrow Transplant Link. There are podcasts, publications and information for people pre and post transplant. Here is the link:
https://www.nbmtlink.org/
Look on the menu and check out Publications. There is info on financial guides per state.
If you are close to Jacksonville I would highly suggest Mayo Clinic. Having the deep bench of specialists with a larger teaching/research hosptial/clinic is important.
Do your kids live nearby who could give a hand if needed??